good buddies

this post is for the guys who think they know how to provide for my family better than me

did you have to comfort your wife today when she came home crying because your son wants so bad to be able to keep up with the other kids in the neighboorhood and he just cant?

no you didn't

did you have to wrestle with "should i keep him home and safe, or give him a shot at independance and let him play at the house next door?" and then did you fight back tears and feel your heart stop and drown in guilt when someone came running over to say that your son got hurt?

no you didn't

do you have to fight back the anger/frustration/anxiety/ tears when your kid wants to play with the other kids and mcdonalds playland, but they just stare at him for a minute, then run the other way?

no you don't

does guilt suffocate you on a daily basis because you can't afford all the equpiment that you know would help your son function more independantly?

no it doesn't

did you comfort me when i came to you hurting?

no you didn't, you preached at me and told me i'm not doing enough

now accepting

now accepting donations in the form of sportster












*if you ever are stuck between "do i buy xs650 for 1500 or a sporty for 4000?", sporty evertime (well 9something%)

hate these decisions

this video explains an operation they want us to consider for Noah, my 5 year old with cerebral palsy...inshort, they cut his back open, pull a vertabre out, then pull out the nerves, test nerves to see which seem to cause the most spasticity, permanently cut those nerves, put them and bone back in...making these decisions kill me...then watching him suffer through is all with the uncertainty of "is this going to be worth it?"...the last few years have really been eating me alive

i totally get this lady

her blog post http://cerebralpalsyfriends-mom2three.blogspot.com/2011/06/what-is-like-to-be-mother-to-child-with.html